Over one in five adults in the US lives with a mental illness. In the face of a shortage of mental health professionals and offline resources, online short-form video content has grown to serve as a crucial conduit for disseminating mental health help and resources. However, the ease of content creation and access also contributes to the spread of misinformation, posing risks to accurate diagnosis and treatment. Detecting and understanding engagement with such content is crucial to mitigating their harmful effects on public health. We perform the first quantitative study of the phenomenon using YouTube Shorts and Bitchute as the sites of study. We contribute MentalMisinfo, a novel labeled mental health misinformation (MHMisinfo) dataset of 739 videos (639 from Youtube and 100 from Bitchute) and 135372 comments in total, using an expert-driven annotation schema. We first found that few-shot in-context learning with large language models (LLMs) are effective in detecting MHMisinfo videos. Next, we discover distinct and potentially alarming linguistic patterns in how audiences engage with MHMisinfo videos through commentary on both video-sharing platforms. Across the two platforms, comments could exacerbate prevailing stigma with some groups showing heightened susceptibility to and alignment with MHMisinfo. We discuss technical and public health-driven adaptive solutions to tackling the "epidemic" of mental health misinformation online.

Mohit Chandra, Siddharth Sriraman, Gaurav Verma, Harneet Singh Khanuja, Jose Suarez Campayo, Zihang Li, Michael L. Birnbaum, Munmun De Choudhury. Proceedings of the 2025 Conference of the Nations of the Americas Chapter of the Association for Computational Linguistics: Human Language Technologies (Volume 1: Long Papers). 2025.

Early detection and intervention for relapse is important in the treatment of schizophrenia spectrum disorders. Researchers have developed AI models to predict relapse from patient-contributed data like social media. However, these models face challenges, including misalignment with practice and ethical issues related to transparency, accountability, and potential harm. Furthermore, how patients who have recovered from schizophrenia view these AI models has been underexplored. To address this gap, we first conducted semi-structured interviews with 28 patients and reflexive thematic analysis, which revealed a disconnect between AI predictions and patient experience, and the importance of the social aspect of relapse detection. In response, we developed a prototype that used patients' Facebook data to predict relapse. Feedback from seven patients highlighted the potential for AI to foster collaboration between patients and their support systems, and to encourage self-reflection. Our work provides insights into human-AI interaction and suggests ways to empower people with schizophrenia.

In the mental health domain, patient engagement is key to designing human-centered technologies. CSCW and HCI researchers have delved into various facets of collaboration in AI research; however, previous research neglects the individuals who both produce the data and will be most impacted by the resulting technologies, such as patients. This study examines how interdisciplinary researchers and mental health patients who donate their data for AI research collaborate and how we can improve human-centeredness in mental health AI research. We interviewed patient participants, AI researchers, and clinical researchers in a federally funded mental health AI research project. We used the concept of boundary objects to understand stakeholder collaboration. Our findings reveal that the social media data provided by patient participants functioned as boundary objects that facilitated stakeholder collaboration. Although the collaboration appeared to be successful, we argue that building consensus, or understanding each other's perspectives, can improve the human-centeredness of mental health AI research. Based on the findings, we provide suggestions for human-centered mental health AI research, working with data donors as domain experts, making invisible work visible, and privacy implications.

Social media platforms are being utilized by individuals with mental illness for engaging in self-disclosure, finding support, or navigating treatment journeys. Individuals also increasingly bring their social media data to psychotherapy consultations. This emerging practice during psychotherapy can help us to better understand how patients appropriate social media technologies to develop and iterate patient narratives -- the stories of patients' own experiences that are vital in mental health treatment. In this paper, we seek to understand patients' perspectives regarding why and how they bring up their social media activities during psychotherapy consultations as well as related concerns. Through interviews with 18 mood disorder patients, we found that social media helps augment narratives around interpersonal conflicts, digital detox, and self-expression. We also found that discussion of social media activities shines a light on the power imbalance and privacy concerns regarding use of patient-generated health information. Based on the findings, we discuss that social media data are different from other types of patient-generated health data in terms of supporting patient narratives because of the social interactions and curation social media inherently engenders. We also discuss privacy concerns and trust between a patient and a therapist when patient narratives are supported by patients' social media data. Finally, we suggest design implications for social computing technologies that can foster patient narratives rooted in social media activities.

For people diagnosed with mental health conditions, psychiatric hospitalization is a major life transition, involving clinical treatment, crisis stabilization and loss of access of social networks and technology. The period after hospitalization involves not only management of the condition and clinical recovery but also re-establishing social connections and getting back to social and vocational roles for successful reintegration - a significant portion of which is mediated by social technology. However, little is known about how people get back to social lives after psychiatric hospitalization and the role social technology plays during the reintegration process. We address this gap through an interview study with 19 individuals who experienced psychiatric hospitalization in the recent past. Our findings shed light on how people's offline and online social lives are deeply intertwined with management of the mental health condition after hospitalization. We find that social technology supports reintegration journeys after hospitalization as well as presents certain obstacles. We discuss the role of social technology in significant life transitions such as reintegration and conclude with implications for social computing research, platform design and clinical care.

involving resuming social roles and responsibilities, overcoming stigma and self-maintenance of the condition. Both clinical recovery and social reintegration need to go hand-in-hand for the overall well-being of individuals. However, research exploring social media for mental health has considered narrower, disjoint conceptualizations of people with mental illness - either as a patient or as a support-seeker. In this paper, we combine medical records with social media data of 254 consented individuals who have experienced a psychiatric hospitalization to address this gap. Adopting a theory-driven, Gaussian Mixture modeling approach, we provide a taxonomy of six heterogeneous behavioral patterns characterizing peoples' mental health status transitions around hospitalizations. Then we present an empirically derived framework, based on feedback from clinical researchers, to understand peoples' trajectories around clinical recovery and social reintegration. Finally, to demonstrate the utility of this taxonomy and the empirical framework, we assess social media signals that are indicative of individuals' reintegration trajectories post-hospitalization. We discuss the implications of combining peoples' clinical and social experiences in mental health care and the opportunities this intersection presents to post-discharge support and technology-based interventions for mental health.

A growing body of research is combining social media data with machine learning to predict mental health states of individuals. An implication of this research lies in informing evidence-based diagnosis and treatment. However, obtaining clinically valid diagnostic information from sensitive patient populations is challenging. Consequently, researchers have operationalized characteristic online behaviors as "proxy diagnostic signals" for building these models. This paper posits a challenge in using these diagnostic signals, purported to support clinical decision-making. Focusing on three commonly used proxy diagnostic signals derived from social media, we find that predictive models built on these data, although offer strong internal validity, suffer from poor external validity when tested on mental health patients. A deeper dive reveals issues of population and sampling bias, as well as of uncertainty in construct validity inherent in these proxies. We discuss the methodological and clinical implications of these gaps and provide remedial guidelines for future research.

Self-disclosure of stigmatized conditions is known to yield therapeutic benefits. Social media sites are emerging as promising platforms enabling disclosure around a variety of stigmatized concerns, including mental illness. What kind of behavioral changes precede and follow such disclosures? Do the therapeutic benefits of "opening up" manifest in these changes? In this paper, we address these questions by focusing on disclosures of schizophrenia diagnoses made on Twitter. We adopt a clinically grounded quantitative approach to first identify temporal phases around disclosure during which symptoms of schizophrenia are likely to be significant. Then, to quantify behaviors before and after disclosures, we define linguistic measures drawing from literature on psycholinguistics and the socio-cognitive model of schizophrenia. Along with significant linguistic differences before and after disclosures, we find indications of therapeutic outcomes following disclosures, including improved readability and coherence in language, future orientation, lower self preoccupation, and reduced discussion of symptoms and stigma perceptions. We discuss the implications of social media as a new therapeutic tool in supporting disclosures of stigmatized conditions.