Sabrina Mangal

dblp:256/6866 · DBLP profile ↗
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12ranked-venue papers
7as first author
12since 2021 · last 2024
0000-0003-2059-6369ORCID · corroborated

Domains — the database's venue-derived domains; a paper can count in several

Applied, interdisciplinary, general and emerging computing · 12 · 7 first-author · 12 since 2021
YearPublicationVenuePosition
2024 Seeing things the same way: perspectives and lessons learned from research-design collaborations
abstract
Information visualizations are increasingly being developed by informatics researchers to communicate health information to lay audiences. For high-quality results, it is advisable to collaborate with creative professionals such as graphic designers, illustrators, or user interface/user experience designers. However, such collaborations are often a novel experience for both parties, each of which may be unfamiliar with the needs and processes of the other. We have coalesced our experiences from both the research and design perspectives to offer practical guidance in hopes of promoting the success of future collaborations. We offer suggestions for determining design needs, communicating with design professionals, and carrying out the design process. We assert that successful collaborations are predicated on careful and intentional planning at the outset of a project, a thorough understanding of each party's scope expertise, clear communication, and ample time for the design process to unfold.
Sabrina Mangal, Lauren Berger, Jean-Marie Bruzzese, Alexandra de la Cruz, Maichou Lor, Imama A Naqvi, Eugenio Solis de Ovando, Nicole Spiegel-Gotsch, Samantha Stonbraker, Adriana Arcia
J. Am. Medical Informatics Assoc.1
2022 Putting the user back in user-centered design: Strategies for incorporating patient goals and values throughout the design of decision aids
Sabrina Mangal, Natalie C. Benda, Ruth M. Masterson Creber, Meghan Reading Turchioe, Adriana Arcia
AMIA1
2022 Patient Experiences with a Technology-Facilitated N-of-1 Clinical Trial for Shared Decision-Making about Beta-Blocker Medication Usage
Sabrina Mangal, Maryam Hyder, Hannah Curtis, Kate Zarzuela, Mahad Musse, Christina Ramasami, Monika M. Safford, Mark Lachs, Parag Goyal
AMIA1
2022 Building Trust in Research Through Information and Intent Transparency with Health Information
Sabrina Mangal, Leslie Park, Meghan Reading Turchioe, Jacky Choi, Stephanie Niño de Rivera, Annie C. Myers, Parag Goyal, Lydia Dugdale, Ruth M. Masterson Creber
AMIA1
2022 Preferences For Research Data Access and Ethical Implications of Data Sharing Among Older Adults
Stephanie Niño de Rivera, Sabrina Mangal, Annie C. Myers, Ruth M. Masterson Creber, Lydia Dugdale
AMIA2
2022 Returning Study Results to Research Participants: Data Access, Format, and Sharing Preferences
Stephanie Niño de Rivera, Sabrina Mangal, Annie C. Myers, Meghan Reading Turchioe, Ruth M. Masterson Creber
AMIA2
2022 Building trust in research through information and intent transparency with health information: representative cross-sectional survey of 502 US adults
abstract
OBJECTIVE: Participation in healthcare research shapes health policy and practice; however, low trust is a barrier to participation. We evaluated whether returning health information (information transparency) and disclosing intent of data use (intent transparency) impacts trust in research. MATERIALS AND METHODS: We conducted an online survey with a representative sample of 502 US adults. We assessed baseline trust and change in trust using 6 use cases representing the Social-Ecological Model. We assessed descriptive statistics and associations between trust and sociodemographic variables using logistic and multinomial regression. RESULTS: Most participants (84%) want their health research information returned. Black/African American participants were more likely to increase trust in research with individual information transparency (odds ratio (OR) 2.06 [95% confidence interval (CI): 1.06-4.34]) and with intent transparency when sharing with chosen friends and family (3.66 [1.98-6.77]), doctors and nurses (1.96 [1.10-3.65]), or health tech companies (1.87 [1.02-3.40]). Asian, Native American or Alaska Native, Native Hawaiian or Pacific Islander, Multirace, and individuals with a race not listed, were more likely to increase trust when sharing with health policy makers (1.88 [1.09-3.30]). Women were less likely to increase trust when sharing with friends and family (0.55 [0.35-0.87]) or health tech companies (0.46 [0.31-0.70]). DISCUSSION: Participants wanted their health information returned and would increase their trust in research with transparency when sharing health information. CONCLUSION: Trust in research is influenced by interrelated factors. Future research should recruit diverse samples with lower baseline trust levels to explore changes in trust, with variation on the type of information shared.
Sabrina Mangal, Leslie Park, Meghan Reading Turchioe, Jacky Choi, Stephanie Niño de Rivera, Annie C. Myers, Parag Goyal, Lydia Dugdale, Ruth M. Masterson Creber
J. Am. Medical Informatics Assoc.1
2021 Patient Preferences for Accessing, Communicating, and Sharing Health Information using Visualized Patient-Reported Outcomes
Sabrina Mangal, Leslie Park, Meghan Reading Turchioe, Lisa Grossman Liu, Annie C. Myers, Brittany N. Taylor, Parag Goyal, Lydia Dugdale, Ruth M. Masterson Creber
AMIA1
2021 Public Perspectives on the Ethical Collection and Sharing of Consumer-Generated Health Information
Sabrina Mangal, Leslie Park, Meghan Reading Turchioe, Lisa Grossman Liu, Annie C. Myers, Brittany N. Taylor, Parag Goyal, Lydia Dugdale, Ruth M. Masterson Creber
AMIA1
2021 Addressing Challenges and Strategies for Virtual Recruitment for Longitudinal Studies
Annie C. Myers, Meghan Reading Turchioe, Sabrina Mangal, Leslie Park, Lisa Grossman Liu, Ruth M. Masterson Creber
AMIA3
2021 Technology and Data Sharing Preferences in mHealth Research Interventions
Leslie Park, Sabrina Mangal, Meghan Reading Turchioe, Annie C. Myers, Brittany N. Taylor, Ruth M. Masterson Creber
AMIA2
2021 To share or not to share: Exploring the ethical implications of sharing personal health data with patients and informal caregivers
Meghan Reading Turchioe, Sabrina Mangal, Marianne Sharko, Natalie C. Benda, Ruth M. Masterson Creber
AMIA2