This paper presents a qualitative study with 17 participants that uses video elicitations to investigate how conversational AI agents driven by large language models might support “shared care,” or coordination of home-based care among family caregivers (FCs) and home care workers (HCWs) who care for the same care recipient (CR). Participants saw conversational AI as a promising tool that might help streamline communication, coordinate shift handovers, bridge language gaps, and support onboarding of new or substitute caregivers. That said, caregivers assumed AI agents would inevitably make mistakes and should thus be designed to signal uncertainty and make it easy to report errors. More broadly, participants discussed how AI agents designed for sensitive home care contexts will need to explicitly preserve the human essence of care, minimize extra data work that might distract from caregiving, and always complement—not replace—human judgment.

This paper explores opportunities and challenges for data-driven advocacy to support home care workers, an often overlooked group of low-wage, frontline health workers.First, we investigate what data to collect and how to collect it in ways that preserve privacy and avoid burdening workers.Second, we examine how workers and advocates could use collected data to strengthen individual and collective advocacy efforts.Our qualitative study with 11 workers and 15 advocates highlights tensions between workers' desires for individual and immediate benefits and advocates' preferences to prioritize more collective and long-term benefits.We also uncover discrepancies between participants' expectations for how data might transform advocacy and their on-the-ground experiences collecting and using real data.Finally, we discuss future directions for data-driven worker advocacy, including combining different kinds of data to ameliorate challenges, leveraging advocates as data stewards, and accounting for workers' and organizations' heterogeneous goals.

We present a qualitative study that investigates the implications of current and near-future AI deployment for home care workers (HCWs), an overlooked group of frontline healthcare workers. Through interviews with 22 HCWs, care agency staff, and worker advocates, we find that HCWs do not understand how AI works, how their data can be used, or why AI systems might retain their information. HCWs are unaware that AI is already being utilized in their work, primarily via algorithmic shift-matching systems adopted by agencies. Participants detail the risks AI poses in sensitive care settings for HCWs, patients, and agencies, including threats to workers' autonomy and livelihoods, and express concerns that workers will be held accountable for AI mistakes, with the burden of proving AI's decisions incorrect falling on them. Considering these risks, participants advocate for new regulations and democratic governance structures that protect workers and control AI deployment in home care work.

Home care workers (HCWs) are an important group of frontline workers that deliver essential at-home care services to enable older adults to age in place. Despite their importance in patient care, research has shown that HCWs are an overlooked and undervalued workforce: HCWs work in isolated conditions, are paid low wages, experience high levels of stress and burnout, and more. As a result, despite being motivated to try and be healthy, this essential workforce suffers from poor physical and mental health outcomes. This paper combines data from focus groups, interviews, and a month-long field study with HCWs to investigate the feasibility and utility of using activity tracking devices to provide HCWs with fine-grained awareness and insights into daily activities that affect their health and wellbeing. We explore HCWs' reactions to both their individual and collective data, discussing their efforts towards positive behavior change, but also highlighting systemic and occupational factors that may limit HCWs' agency and control over their own activities. Finally, we discuss the potential for HCWs' collective data to raise awareness about their working conditions and provide data-driven evidence to aid advocacy efforts towards improved policies, better wages, or greater protections for this vital workforce.

Home care workers (HCWs) are increasingly central to post-acute and long-term health services in the United States. Despite being a critical component of the day-to-day care of home-dwelling adults, these workers often feel underappreciated and isolated on the job and come from low-income and marginalized backgrounds. Leveraging the support of peers is one potential way to empower HCWs, but peer support encompasses a broad range of activities and aspects. Traditional conceptions of workplace support may not be appropriate to the home care context, as HCWs are a distributed workforce who have few opportunities to interact with each other. In this study, we explore how HCWs value and conceptualize peer support. Our findings demonstrate the importance of peer support in performing the emotional labor of home care work and ongoing attempts to strategically frame the home care profession as essential and medical in nature. Our results ground design implications for technology-enabled peer support based on the power dynamics of our participants' context and allow us to engage with issues where technology design for empowerment intersects with exploitation in distributed or crowd work, emotional labor, and tacit knowledge.