Professional designers often struggle to apply insights from HCI research in their work. To make academic knowledge more accessible to practitioners, HCI researchers have created translational design tools, such as design cards, that support the translation of research insights into design practice. Prior work explored design cards for behavior change, interaction design, personal health informatics, and the sharing economy. Our work complements prior research by exploring the design and use of translational design cards for social aspects of societal resilience through a two-stage study with 14 student designers and eight professional designers. Our findings provide an empirical understanding of the design cards’ generative value for incorporating research insights into the design process. Additionally, we discuss recommendations and highlight opportunities to enhance the design and use of the cards beyond societal resilience.

Researchers are increasingly facilitating qualitative research studies online. While this has made research more accessible for participation, there have been notable encounters with “fraudulent” participants. By fraudulent, we refer to individuals who are deceptive about meeting the inclusion criteria, their identity, or experiences. Fraudulent participants have generated new challenges for researchers who have to interact 1:1 with these individuals, face ethical dilemmas on appropriate next steps, diagnose and prevent the issue from happening again, and deal with their own identity as a scholar. In this study, we interview 16 HCI researchers to understand and learn from their experiences. We contribute: (1) an understanding of how HCI qualitative researchers deal with fraudulent participants; (2) a guide for qualitative HCI researchers on how to handle fraudulence; and (3) a reflection on how the HCI research community might better improve our science and training efforts.

The COVID-19 pandemic has threatened disproportionately rural older adults’ health and well-being as they suffer from unique social exclusion due to a lack of services, such as transportation, communication infrastructure, healthcare, and social services. Although older adults can uniquely cope with pandemic adversity compared to younger adults, less attention has been directed to investigating the coping and resilience of rural older adults. To understand how diverse coping strategies impact the resilience of rural older adults, we conducted interviews with 26 rural and small-town older adults. Older adult participants adopted different coping strategies, such as following protective measures, keeping themselves busy, providing and receiving social support, and having a positive mindset. They experienced positive changes, such as increased interpersonal connectivity. Older adults’ individual-level coping processes are influenced by their social and physical environments. We explore design opportunities to support older adults’ resilient practices and harness their skills to facilitate community resilience.

Epilepsy, a prevalent chronic neurological disorder, presents numerous challenges for people with epilepsy (PWEs) and their caregivers. They experience difficulties in receiving proper care and support due to stigma and misconceptions. Promoting public awareness in early education would be critical to reduce the stigma and to properly support them. We conducted 145 surveys and 21 interviews with teachers, school nurses, and parents of elementary and middle school students. While the participants exhibited slightly positive attitudes towards PWEs, we identified obstacles that hinder learning about epilepsy and seizure first aid: inadequate education and limited information sharing among school stakeholders. Moreover, there is a pressing need for age-appropriate education that considers the students' ages and perceptual levels. Considering the current limitations and needs, we propose potential implications for future information and communication technologies (ICTs) designs, including knowledge-sharing systems and an educational game aimed at enhancing epilepsy awareness and fostering collaborative care in elementary and middle school environments.

Research on smart home monitoring for older adults has predominantly focused on systems whose data and alerts are directed towards family members, caregivers, or healthcare providers. Older adults have expressed interest in engaging with these systems by seeing and using their data, but they are often limited to a passive role as subjects of monitoring. This paper presents qualitative results of a longitudinal smart home project with older adults living independently in the community. Based on interviews conducted throughout the 2.5-year study with 12 participants, we report on their lived experiences of having the monitoring system in their homes and on how they reflected on the data collected by the system. The results show how participants were able to extract meaningful information from the monitoring data without finding the system invasive or intrusive. Specifically, older adults exhibited interest in data that they found indicative of living an active lifestyle, such as time spent outside the home. Drawing from critical literature on active aging, we discuss implications for incorporating peer comparisons to support reflection on personal health data without reinforcing a deficit narrative of aging.

Aging in place technologies are designed to extend independence and autonomy in older adults, promoting quality of life and peace of mind. Prior work has described how adoption and continued use of these technologies are low when they are perceived as reinforcing aging stigma or reminding older adults of negative aspects of aging. Building on past research, we investigate older adults’ perceptions of four different kinds of aging in place technologies. Based on in-depth interviews with 18 older adults using a set of scenarios, we describe how different design characteristics contribute to perceived aging stigma. Additionally, we draw on Duner & Nordström’s classification of coping strategies to discuss how specific kinds of technology can best support older adults during different stages of the aging process.

The COVID-19 pandemic led to dire consequences globally, and it has been particularly challenging for older adults. They are at a higher risk of adverse outcomes of the disease \citecdc_covid. Older adults also use less technology than other age groups \citetech_old, so they mostly rely on in-person interactions and services for social support. However, disease mitigation efforts such as social distancing and self-quarantining severely limited in-person interactions, hindering older adults' social support during the COVID-19 crisis. In this paper, we present findings on social support realities from semi-structured interviews with older adults (N=15) living alone in community dwellings. We found that older adults' support roles, support sources, and support concerns evolve as they passed through this time of sweeping change. They are enthusiastic about providing support to people who are older and more vulnerable than themselves. At the same time, their needs for safety, autonomy, and independence create tensions around social support. We propose a framework to illustrate the evolving ecology of social support that can facilitate the holistic design of socio-technical support systems for older adults. We argue against the societal portrayal of older adults as vulnerable individuals. Rather, there is an opportunity to design support systems considering them as anchors in society. Towards that goal, we present design implications for future socio-technical support systems to empower older adults to age in place during a crisis.

We characterize how people with rare diseases consider their support needs as being met or neglected by different sources. After a 22-week study with 11 participants, we found that people with rare diseases identify strongly with their conditions but demonstrate a range of outlooks on their condition (positive, negative, and accepting). We found that participants think of themselves as being in a separate "Rare World" from the "normal" people in their lives and that relationships with friends and family members are strained. On the other hand, online communities were described as valuable sources of many forms of support, but do not adequately compensate for the lack of tangible support in offline relationships. We propose an approach to facilitating tangible support that leverages existing research on social matching, towards facilitating support among people with different rare diseases to overcome geographic and symptomatic challenges of coordinating support between people with the same rare disease.

Traditional qualitative research methods, such as, interviews and focus groups, may not be feasible for certain populations- who face time, mobility, and availability constraints. We adapted the Asynchronous, Remote, Community-based (ARC) method that used closed Facebook groups to study people with rare diseases, to study a different population - pregnant and new mothers. During the course of eight weeks, we engaged 48 participants in 19 study activities using three closed Facebook groups. We added new activities to the original ARC method, informed by past HCI research, to triangulate participant input. We carefully analyzed participation patterns and activity engagement, to assess the suitability of the ARC method for engaging pregnant and new mothers in remote, group-based, qualitative research. We provide an in-depth analysis of the ARC method, noting participation characteristics, activity preferences, and the suitability of the ARC method as an online focus group.

Portion size estimation is important for managing dietary intake in many chronic conditions. We conducted a 6-week field study with nine varying literacy dialysis patients to explore the usability and feasibility of a dietary intake mobile application that emphasizes portion size estimation. Seven participants demonstrated sustained use of the application and improved their self-efficacy, knowledge, and ability to estimate portion sizes in pre- and post-study assessments. Participants reported moments when portion size information in the application differed from their prior understanding, challenging them to reconcile dissonant information. Although participants acquired new knowledge about portion sizes, they struggled to accurately estimate portion sizes in situ for most foods. Despite using the application consistently, rating it highly, and exhibiting learning, we found that self-efficacy and knowledge are not sufficient to support improved behaviors in everyday life.

Various technologies have been developed to help make the world more accessible to visually impaired people, and recent advances in low-cost wearable and mobile computing are likely to drive even moreadvances. However, the unique privacy and security needs of visually impaired people remain largely unaddressed. We conducted an exploratory user study with 14 visually impaired participants to understand the techniques they currently use for protecting privacy, their remaining privacy concerns,and how new technologies may be able to help. The interviews explored privacy not only in the physical world (e.g., bystanders overhearing private conversations) and the online world (e.g., determining if a URL is legitimate), but also in the interface between the two (e.g. bystanders `shoulder-surfing' data from screens). The study revealed serious concerns that are not adequately solved by current technology, and suggested new directions for improving the privacy of this significant fraction of the population.

Researchers have created innovative technological solutions to support people with common chronic illnesses. In this study, we investigate design opportunities for people with rare diseases who are not well studied or have smaller populations to work with, because although an individual's disease may be rare, the number of people living with a rare disease is substantial. We conducted an interview study with 19 individuals with rare diseases from around the world to understand common problems and experiences that could be supported through design. We found that communicating with friends, family, and providers about her disease were challenges for participants. Additionally, participants thought of their disease as being a large part of who they were. We discuss these findings in the context of prior work on common chronic illnesses, addressing the potential relevance of existing technological interventions for people with rare diseases.

In this paper we describe the design evolution of a novel technology that collects and displays presence information to be used in the homes of older adults. The first two iterations, the Ambient Plant and Presence Clock, were designed for higher socio-economic status (SES) older adults, whereas the Check-In Tree was designed for low SES older adults. We describe how feedback from older adult participants drove our design decisions, and give an in-depth account of how the Check-In Tree evolved from concept to a final design ready for in situ deployment.

In-home technologies can support older adults' activities of daily living, provide physical safety and security, and connect elders to family and friends. They facilitate aging in place while reducing caregiver burden. One of older adults' primary concerns about in-home technologies is their potential to reduce human contact, particularly from cherished caregivers. In this exploratory in situ study, we provided an ecosystem of networked monitoring technologies to six older adults and their caregivers. We analyzed the amount and content of communication between them. The amount of noncomputer-mediated communication did not decrease through the 6-week study. The content of communication coalesced into four themes: communication about the technologies, communication facilitated by technologies, intrusiveness of technologies, and fun and playfulness with the technologies. Results suggest that in-home technologies, designed with sensitivity to older adults' primary motivations, have the potential to shape and tailor important relationships in later life.

In this paper we describe findings from two studies aimed at understanding how health monitoring technology affects the parent-child relationship, examining emotional response and barriers to using this type of technology. We present suggestions for the design of health monitoring technology intended to enhance self-care in children without creating parent-child conflict. Our recommendations integrate the study findings, developmental stage specific concerns, and prior HCI research aimed at children's health.

OBJECTIVE: Design and evaluation of the dietary intake monitoring application (DIMA) to assist varying-literacy patients receiving hemodialysis to adhere to their prescribed dietary regimen. METHODS: An iterative, user-centered design process informed by Bandura's social cognitive theory was employed to design DIMA--a mobile application that utilizes touch-screen, visual interfaces; barcode scanning; and voice recording to assist varying-literacy patients receiving hemodialysis to self-monitor their diet. A pilot field study was conducted where 18 patients receiving hemodialysis were recruited face-to-face from two dialysis facilities to use DIMA for 6 weeks. Subjects recorded their dietary intake using DIMA and met with research assistants three times each week. All interactions with DIMA were logged. Subjects' interdialytic weight gain was recorded throughout the study. At the end of the study, two face-to-face questionnaires were administered to assess usability and context of use. RESULTS: Subjects were able to use DIMA successfully--12 subjects used DIMA as much or more at the end of the study as they did at the beginning and reported that DIMA helped them change their diet. Subjects had difficulty using the barcode scanner. Viewing past meals was the most used of the reflection mechanisms in DIMA. CONCLUSION: Results suggest that while many design features were useful, some could be improved. In particular, future versions of DIMA will be on a smartphone using a camera for barcode scanning, integrate feedback and past meal reflection into the normal flow of the application, and support visual cues when selecting food items.

In this paper we discus the complex task of evaluating ambient displays, concentrating on issues within in-situ deployments. We start by describing how these technologies have been evaluated in lab settings, where the focus has been primarily on issues of usability, and argue strongly for the necessity of in-situ evaluation. We then present two case studies involving in-situ evaluations, and from these derive issues that hindered the researchers from being able to delve more deeply into the overall impact of their implementations. We conclude with our own suggestions on possible alternatives to explore for evaluating ambient displays, which are based on the issues derived from our case studies.

Web services have been widely used to support context-aware applications for context information retrieval in a ubiquitous environment. However, most of the existing research efforts in this field only focus on using SOAP web service as an enabling technology. In this paper, we compare REST and SOAP web services for supporting ubiquitous environments. We describe our approaches to deploy an open ubiquitous computing environment using REST style services along with semantic web and mobile technologies. We also discuss an example context-aware application developed for the environment and show how REST style services can contribute in moving ubiquitous computing technologies into the real world.

In this paper, we describe a formative study to learn how one chronically ill population thinks about food, mentally organizes food, and interprets consumption-level icons. We found that many participants let their pride influence their choices, resulting in preferred interfaces that they could not accurately interpret. The results indicate that participants organized food in similar ways, had difficulty reading from their preferred consumption-level icons, and wanted to combine multiple interface designs when searching for food.

The proliferation of cell phones has led to an ever increasing number of inappropriate interruptions. Context-aware telephony applications, in which callers are provided with context information about the receivers, has been proposed as a solution for this problem. This approach, however, raises many privacy issues that may render it infeasible. In this paper, we report on an in-situ study of user privacy preferences and patterns of sharing different types of context information with different social relations. We found that participants disclosed their context information generously, suggesting that context-aware telephony is not only feasible, but also desirable. Our data shows a distinct sharing pattern across social relations and different types of context information. We discuss the implications of the results for designers of context-aware telephony in particular and context-aware applications in general.

This paper attempts to reconcile the high performance community's requirement of high performance with the need for security, and reconcile some accepted security approaches with the performance constraints of high-performance networks. We propose a new paradigm and challenge existing practice. The new paradigm is that not all domains need longterm forward data confidentiality. In particular, we take a fresh look at security for the high-performance domain, focusing particularly on component-based applications. We discuss the security and performance requirements of this domain in order to elucidate both the constraints and opportunities. We challenge the existing practice of high-performance networks sending communication in plaintext. We propose a security mechanism and provide metrics for analyzing both the security and performance costs.

FM-QoS employs a novel communication architecture based on network feedback to provide predictable communication performance (e.g. deterministic latencies and guaranteed bandwidths) for high speed cluster interconnects. Network feedback is combined with self-synchronizing communication schedules to achieve synchrony in the network interfaces (NIs). Based on this synchrony, the network can be scheduled to provide predictable performance without special network QoS hardware. We describe the key element of the FM-QoS approach, feedback-based synchronization (FBS), which exploits network feedback to synchronize senders. We use Petri nets to characterize the set of self-synchronizing communication schedules for which FBS is effective and to describe the resulting synchronization overhead as a function of the clock drift across the network nodes. Analytic modeling suggests that for clocks of quality 300 ppm (such as found in the Myrinet NI), a synchronization overhead less than 1% of the total communication traffic is achievable -- significantly better than previous software-based schemes and comparable to hardware-intensive approaches such as virtual circuits (e.g. ATM). We have built a prototype of FBS for Myricom s Myrinet network (a 1.28 Gbps cluster network) which demonstrates the viability of the approach by sharing network resources with predictable performance. The prototype, which implements the local node schedule in software, achieves predictable latencies of 23 µs for a single-switch, 8-node network and 2 KB packets. In comparison, the best-effort scheme achieves 104 µs for the same network without FBS. While this ratio of over four to one already demonstrates the viability of the approach, it includes nearly 10 µs of overhead due to the software implementation. For hardware implementations of local node scheduling, and for networks with cascaded switches, these ratios should be much larger factors.