Churches have historically played an important role in Black American communities, catalyzing the pursuit of aims such as social justice, community organization, and health promotion. However, researchers have rarely examined how technology can support an assets-based approach to these efforts, nor the implications of race, traditions, and history when creating such systems. Addressing this gap, we conducted research with two predominantly Black churches to explore health promotion design opportunities. We used photovoice, a research method where participants led their own data collection and analysis. Participants provided nuanced descriptions of the racial and ethnic identities of their communities, and how church history and aspirations for the future impacted these identities. Our findings characterize tensions between tradition and ‘modernization,’ implications for technology design, and the need for a temporal approach to understanding communities. We conclude with broader implications for studying the intersection of race and religion in community technology design.

Churches play a major role in providing social support to address health inequities within Black communities, in part by connecting members to key organizations and services. While public health has a history of disseminating interventions in faith communities, little work has explored the use of crowdsourcing to tailor interventions to the unique culture of each church community. Following Community Based Participatory Research principles, we partnered with two predominantly Black churches, and report on a series of three participatory design sessions with nine participants. We developed a novel storyboarding method to explore how crowdsourcing could promote health in these faith-based communities. Our findings characterize existing supports within the church community, and how church social structures impact member access to these supports. We further identify motivations to engage with a church-situated health application, and how these motivations translate to crowdsourcing tasks. Finally, we discuss considerations for public health crowdsourcing tasks.

Culturally informed design for virtual agents has been shown to positively impact health outcomes when tailored to target audiences. We present a participatory design methodology for culturally tailoring virtual agents. Investigators worked with key informants from our target population, members of predominantly Black church communities, to design culturally-relevant and sensitive virtual agent health promotion interventions. In the first participatory session, key informants designed agents to assist them with different aspects of their lives, providing input on agent appearance and agent functionality. In a second design session, participants re-wrote the content of a health conversation with an agent, to include personally-relevant content related to their community (e.g., religious and scriptural references). We report design principles for religious tailoring derived from these studies. We conducted a validation study to assess the effects of applying these principles to agents that promoted two health behaviors, finding that participants responded very positively to the tailored agents.

Caregivers of persons with dementia (PWD) experience higher rates of stress, social isolation, and poor mental and physical health compared to non-caregiving populations. There is a vital need for engaging, sustainable, and scalable resources to support social, physical, and emotional wellbeing amongst caregivers of PWD. To explore this open design space, we designed and conducted a 6-week mixed-method evaluation of Go&Grow, a pervasive social exergame in which flowers grow as users increase physical activity and interact with other caregivers of PWD. Our findings showed that using Go&Grow helped participants relieve stress, increase physical activity, and develop empathy for and patience towards the loved one with dementia that they cared for. At the same time, tension arose as some caregivers desired to learn about the life challenges that Go&Grow users faced, while others hesitated to share such content. We discuss our findings and recommendations for future technology that promotes caregivers' time for themselves, understanding of PWD, and connections with other caregivers.

The social stigma looming over disclosures of sexual violence discourages many women from publicly sharing their stories, limiting their ability to seek support and obscuring the epidemic of sexual violence against women. By inviting women to share their ordinarily silenced stories, the hashtag #MeToo surfaced a network of survivors to confront this stigma. Through a mixed-methods analysis of over 1.8 million tweets posted during the first two weeks after #MeToo gained widespread popularity in 2017, we map the landscape of disclosures that emerged and disentangle the effects of network-level reciprocal disclosures, or disclosures made in reaction to seeing others disclose. We detail how survivors disclosed a diversity of sexual violence experiences in solidarity with others, composing nearly half of all authored tweets and comprising a disproportionate number of interactions within the #MeToo network. Further, we show that the more disclosures an individual potentially saw prior to disclosing, the more likely they were to share details with their disclosure. We argue that such network-level reciprocal disclosures may have reduced stigma, creating a counterpublic space safe for disclosure which, subsequently, generated more disclosures. Our work illustrates how feminist hashtag activism, like #MeToo, can unify individual and collective narratives to dismantle the stigma surrounding disclosures of sexual violence. Content warning: This article heavily discusses issues of sexual violence against women.

The number of informal caregivers for family members with Alzheimer's Disease (AD) is rising dramatically in the United States. AD caregivers disproportionately experience numerous health problems and are often isolated with little support. An active lifestyle can help prevent and mitigate physical and psychological health concerns amongst AD caregivers. Research has demonstrated how pervasive exergames can encourage physical activity (PA) in the general population, yet little work has explored how these tools can address the significant PA barriers that AD caregivers face. To identify opportunities for design, we conducted semi-structured interviews and participatory design sessions with 14 informal caregivers of family members with AD. Our findings characterize how becoming an AD caregiver profoundly impacts one's ability to be active, perspectives on being active, and the ways that exergames might best support this population.We discuss implications for design and howour findings challenge existing technological approaches to PA promotion.

Diverse disciplines, including Human-Computer Interaction have explored how mobile health (mHealth) applications can transform healthcare and health promotion. Increasingly, research has explored how mHealth tools can promote healthy behaviors within vulnerable populations-groups that disproportionately experience barriers to wellness. We conducted a systematic review of 83 papers from diverse disciplines to characterize the design and impact of mHealth tools in low-socioeconomic (low-SES) and racial/ethnic minority individuals. Our findings highlight that the diversity within low-SES and racial/ethnic minority groups was not reflected in the populations studied. Most studies focused on improving the health of individuals, often neglecting factors at the community and society levels that influence health disparities. Moreover, few improvements in health outcomes were demonstrated. We further discuss factors that acted as barriers and facilitators of mHealth intervention adoption. Our findings highlight trends that can drive critically needed digital health innovations for vulnerable populations.

Many countries are confronted with aging societies. With the increasing need for elder care, it is necessary to investigate how technology can support aging in place. In this paper, we propose an ambient smart calendar system that supports the self-sufficiency and activeness of older adults. We report the results of a survey of older adults on their use of physical and digital calendars. Based on the results, we developed Caloo (Calendar of opportunities) - a prototypical smart wall calendar which supports older users by generating awareness about their daily schedules as well as supporting them in remaining active in their lives through event suggestions. We evaluated Caloo in a study with retired older adults. Overall, we received positive feedback and identified data sources for events, which the smart calendar can suggest to the user. Our results indicate the potential of deploying an ambient and pervasive smart calendar system that supports aging in place.

The increase in the availability of personal genomic data to lay consumers using online services poses a challenge to HCI researchers: such data are complex and sensitive, involve multiple dimensions of uncertainty, and can have substantial implications for individuals' well-being. Personal genomic data are also unique because unlike other personal data, which constantly change, genomic data are largely stable during a person's lifetime; it is their interpretation and implications that change over time as new medical research exposes relationships between genes and health. In this paper, we present a novel tool for self exploration of personal genomic data. To evaluate the usability and utility of the tool, we conducted the first study of a genome interpretation tool to date, in which users used their own personal genomic data. We conclude by offering design implications for the development of interactive personal genomic reports.