This paper explores how the design of interactive voice assistants (IVAs) might be tailored to support home health aides’ important work in complex home care contexts. We designed two custom IVAs: one that looks like an aide’s medical kit and one that blends into the home environment. We also designed a voice-based application that provides aides with guidance for day-to-day tasks and for performing a medical assessment. Via a lab-based study with 25 aides and seven patients, we explore how tailoring the IVAs’ design to home health care might impact its acceptability as a work device, enabling cooperative work among aides and clients, while potentially causing conflict that will require IVA designers to decide whose values to prioritize. We also highlight limits in aides’ power to control IVAs in clients’ homes. Finally, we discuss implications for designing privacy-preserving IVAs, including leveraging IVAs’ physical design to enact privacy mechanisms and opportunities to build ‘always on’ IVAs for privacy-sensitive contexts like home health care.

Research in personal informatics (PI) calls for systems to sup- port social forms of tracking, raising questions about how privacy can and should support intentionally sharing sensitive health information. We focus on the case of personal data related to the self-tracking of bipolar disorder (BD) in order to explore the ways in which disclosure activities intersect with other privacy experiences. While research in HCI of- ten discusses privacy as a disclosure activity, this does not reflect the ways in which privacy can be passively experienced. In this paper we broaden conceptions of privacy by defining transparency experiences and contributing factors in contrast to disclosure activities and preferences. Next, we ground this theoretical move in empirical analysis of personal narratives shared by people managing BD. We discuss the resulting emer- gent model of transparency in terms of implications for the design of socially-enabled PI systems. CAUTION: This paper contains references to experiences of mental illness, including self-harm, depression, suicidal ideation, etc.