Large scale urban planning consultations can elicit public contributions with limited reflectivity and scope in comparison with participatory projects in HCI. We therefore investigated how digital technology can be configured to enable participation at greater depth and at scale in Metro Futures 2020 – an online public consultation on light rail trains. Drawing on participatory methods used in HCI, we devised experience-centered and creative activities at different depths and scales – from “shallow and wide” social media polls to “deep and narrow” online workshops – and a website with three ways of exploring a digital train mock-up. Participation on the website was both at scale and to notable depth according to our analyses of data entry behavior and website comments. Our findings show that the value of online public consultations can be increased through providing experiential context for design proposals, supporting exploration of design details via immersion, and providing interconnected activities of varying depths and scales.

Recent HCI research has investigated how digital technologies might enable citizens to identify and express matters of civic concern. We extend this work by describing JourneyCam, a smartphone-based system that enables powered wheelchair users to capture video and sensor data about their experiences of mobility. Thirteen participants used JourneyCam to document journeys, after which the data they collected was used to support discussions around their experiences. Our findings highlight how the system facilitated the articulation of complex embodied experiences, and how the collected data might have particular value in surfacing these experiences to help inform urban design and policymaking. Participants valued the ways in which JourneyCam's moving image and sensor data made hard-to-express sensations apparent, as well as how it enabled them to surface previously unrecognised issues. We conclude by highlighting future opportunities for how such tools might enable citizens to inform and influence civic governance.

Health care systems increasingly promote self-management of chronic conditions outside of traditional clinical environments, often through technologies which help to support patient self-care and engagement with medical professionals. We investigate specialist care provision in cystic fibrosis (CF), a life-shortening genetic condition, to understand the experiences of those living with it and of professionals who provide such care. Our work highlights how the motivations for the use of technology in this context are often intrinsically linked to the nature of CF itself and the constraints that the condition imposes on care provision. These include the high burden associated with self-management and clinic attendance; the ever-present risk of infection and a subsequent decline in health; and patients who are often very well-informed and actively engaged in their care. In exploring enablers and barriers to technology in this context, we highlight the importance of considering its integration into the chronic care cycles, practices, and structures of CF care.

Digital technologies offer the possibility of community empowerment via the reconfiguration of public services. This potential relies on actively involved citizens engaging with decision makers to pursue civic goals. In this paper we study one such group of involved citizens, examining the evidencing practices of a rare disease charity campaigning for accessible public transport. Through fieldwork and interviews, we highlight the ways in which staff and volunteers assembled and presented different forms of evidence, in doing so reframing what is conceived as 'valid knowledge'. We note the challenges this group faced in capturing experiential knowledge around the accessibility barriers of public transport, and the trade-offs that are made when presenting evidence to policy and decision makers. We offer a number of design considerations for future HCI research, focusing on how digital technology might be configured more appropriately to support campaigning around the politics of mobility.