Existing research has explored various methods to support people with noise sensitivity (PWNS), from desensitization therapies to technological solutions. However, there is a gap in systems that identify and monitor characteristics of noise sensitivity experiences to help PWNS and their companions better understand their condition and make informed management decisions. To fill this gap, we developed AudioBuddy, an app with sensing and tracking features designed to promote awareness between PWNS and their companions. We tested AudioBuddy as a technological probe over a two-week field deployment. Our results show that AudioBuddy can support awareness of how sounds and environments influence the psychophysiological states of PWNS, aiding in understanding noise sensitivity experiences. Nonetheless, technical limitations impacted the depth of awareness participants could attain. We discuss challenges and opportunities for future systems to facilitate awareness among PWNS and their companions.

Family health informatics tools can help support well-being with shared data tracking. Prior work typically focused on shared data review, but often in specific moments, like bedtime, or centered on caregiving of children or elderly members. To investigate how tracking can support mutual health collaboration between family members pervasively across daily contexts, we designed and deployed FamilyBloom, a glanceable smartwatch and home display system for mood and goal tracking. Twelve families with both neurotypical and ADHD members used FamilyBloom for three months on average. Our findings reveal how family-centered tracking created collaboration opportunities and tensions across multiple ecological systems: individual self-regulation, collaborations within family dynamics, involvement of care networks with varying trust levels, institutional school constraints and cultural stigma, and temporality of regular routines and crisis periods. We discuss an ecosystem-aware approach to family informatics, wherein design can attend to how families navigate multiple contexts while sustaining family-level collaboration.

OBJECTIVES: Report the development of the patient-centered myAURA application and suite of methods designed to aid epilepsy patients, caregivers, and clinicians in making decisions about self-management and care. MATERIALS AND METHODS: myAURA rests on an unprecedented collection of epilepsy-relevant heterogeneous data resources, such as biomedical databases, social media, and electronic health records (EHRs). We use a patient-centered biomedical dictionary to link the collected data in a multilayer knowledge graph (KG) computed with a generalizable, open-source methodology. RESULTS: Our approach is based on a novel network sparsification method that uses the metric backbone of weighted graphs to discover important edges for inference, recommendation, and visualization. We demonstrate by studying drug-drug interaction from EHRs, extracting epilepsy-focused digital cohorts from social media, and generating a multilayer KG visualization. We also present our patient-centered design and pilot-testing of myAURA, including its user interface. DISCUSSION: The ability to search and explore myAURA's heterogeneous data sources in a single, sparsified, multilayer KG is highly useful for a range of epilepsy studies and stakeholder support. CONCLUSION: Our stakeholder-driven, scalable approach to integrating traditional and nontraditional data sources enables both clinical discovery and data-powered patient self-management in epilepsy and can be generalized to other chronic conditions.

Schoolchildren in the United States are increasingly exposed to Educational Technologies (EdTech) , many of which are or will be infused with AI. Despite this growing integration, there is limited understanding of the current perceptions and attitudes toward EdTech with AI among parents, teachers, and teens. To address this gap, we conducted a mixed-method study involving an A/B experiment through an online survey with 3,051 participants and complemented by focus group discussions with 80 participants. Providing a comprehensive snapshot of AI perception in education in 2024, our findings indicate that participants, particularly teachers, may hold more negative perceptions of our AI-powered EdTech mock-up compared to the one powered by human tutors. Based on these insights, we discuss the future of EdTech regarding the current perceptions. This research contributes to an empirical understanding of the perceptions and attitudes toward AI in K-12 education, providing valuable insights through a comprehensive national survey and in-depth focus group sessions.

Attention-Deficit/Hyperactivity Disorder (ADHD) affects millions of individuals worldwide, significantly impacting their academic, social, and professional lives.ADHD students in higher education have faced difficulties with time management, organization, focus, and emotional regulation, which impact their academic performance.Through an analysis of discussions within a Reddit community for ADHD university students, we found that accommodations and general study strategies are often inadequate for them.Instead, they develop and share collaborative, community-based strategies to support their academic success, which include (1) participating in diverse forms of co-presence or body doubling for accountability and focus while studying; (2) engaging in active collaborative support with social partners to manage emotions and distractions, and (3) leveraging community-based support for remembering deadlines, staying accountable, and fostering a sense of belonging.We conclude with a discussion of these strategies with respect to literature on co-presence and design considerations for future assistive technologies and accommodations for ADHD students.

Research on understanding and supporting the experiences of people with noise sensitivity (PWNS) and their challenges is limited within HCI. Therefore, we build on prior work to understand the challenges they consider and what technological solutions they create to support them. Through eight participatory design workshops involving PWNS and their carers, we considered their needs and challenges and how technology can be designed to support their well-being. Results indicate that wearable and mobile technology can facilitate awareness of sensory triggers and impacts on their well-being. Further, enabling both self and collaborative regulation is also necessary, especially as end users seek independence or interdependence with those around them to manage their experiences. We identified three tensions for designing technology to support PWNS and their sensory experiences.

Noise sensitivity results in a range of experiences, from small annoyances to extreme pain in response to sound. While anyone can experience it, many neurodivergent people report this sensory processing challenge. Novel technologies can help people with noise sensitivity (PWNS) manage their sensitivities. We conducted an interview study with 21 PWNS and 9 caregivers over three months to understand their management and regulation practices and opportunities for technology-mediated support. We found that awareness is a salient factor that influences both management and regulation practices. Based on their awareness, people primarily use avoidance and sound masking approaches or engage in personal coping strategies such as journaling, setting boundaries, and alerting others to regulate. We build on prior research on interdependence, mutual care, and collaborative work to situate the concept of joint awareness to foster collaborative management and regulation for noise sensitivity. Then, we discuss the role of awareness in noise sensitivity management and regulation and provide design principles for the creation of future technology to support noise sensitivity awareness, management, and regulation.

Family informatics often uses shared data dashboards to promote awareness of each other’s health-related behaviors. However, these interfaces often stop short of providing families with needed guidance around how to improve family functioning and health behaviors. We consider the needs of family co-regulation with ADHD children to understand how in-home displays can support family well-being. We conducted three co-design sessions with each of eight families with ADHD children who had used a smartwatch for self-tracking. Results indicate that situated displays could nudge families to jointly use their data for learning and skill-building. Accommodating individual needs and preferences when family members are alone is also important, particularly to support parents exploring their co-regulation role, and assisting children with data interpretation and guidance on self and co-regulation. We discuss opportunities for displays to nurture multiple intents of use, such as joint or independent use, while potentially connecting with external expertise.

Epilepsy, a prevalent chronic neurological disorder, presents numerous challenges for people with epilepsy (PWEs) and their caregivers. They experience difficulties in receiving proper care and support due to stigma and misconceptions. Promoting public awareness in early education would be critical to reduce the stigma and to properly support them. We conducted 145 surveys and 21 interviews with teachers, school nurses, and parents of elementary and middle school students. While the participants exhibited slightly positive attitudes towards PWEs, we identified obstacles that hinder learning about epilepsy and seizure first aid: inadequate education and limited information sharing among school stakeholders. Moreover, there is a pressing need for age-appropriate education that considers the students' ages and perceptual levels. Considering the current limitations and needs, we propose potential implications for future information and communication technologies (ICTs) designs, including knowledge-sharing systems and an educational game aimed at enhancing epilepsy awareness and fostering collaborative care in elementary and middle school environments.

Children who are noise sensitive may be easily distracted, experience discomfort, and react with negative emotions in the presence of loud or sudden sounds and in environments where they cannot control the noise; this can impact their ability to regulate their emotions. Therefore, implementing effective regulation strategies is necessary to support noise-sensitive children. Assistive technology has been shown to be an effective tool for supporting children and self-regulation. By conducting co-design sessions with noise-sensitive children, we will better understand how we might design an assistive application to support emotion regulation in noise-sensitive children. In this work in progress, we present the initial findings of two pilot co-design sessions and considerations for conducting co-design sessions with children who are noise sensitive.

Epilepsy is a common chronic neurological disease. People with epilepsy (PWE) and their caregivers face several challenges related to their epilepsy management, including quality of care, care coordination, side effects, and stigma management. The sociotechnical issues of the information management contexts and challenges for epilepsy care may be mitigated through effective information management. We conducted 4 focus groups with 5 PWE and 7 caregivers to explore how they manage epilepsy-related information and the challenges they encountered. Primary issues include challenges of finding the right information, complexities of tracking and monitoring data, and limited information sharing. We provide a framework that encompasses three attributes - individual epilepsy symptoms and health conditions, information complexity, and circumstantial constraints. We suggest future design implications to mitigate these challenges and improve epilepsy information management and care coordination.

Music therapists provide critical, evidence-based care to a diverse range of clients. However, despite their active role in empowering individuals affected by disability, stigma, grief, and trauma, music therapists remain understudied by the HCI community. We present the results of a mixed methods study of 10 interviewees and 20 survey respondents in the U.S., all of whom are practicing music therapists. Our results show that music therapists engage in technology-aided practices such as making personalized connections with clients, assisting in identity formation, encouraging musicking (music-making), and preserving legacies. Results also show that music therapists face key challenges such as environmental, societal, and financial constraints, including high workload, lack of awareness of the value of music therapy among the general community, and limited access to secure technologies for remote client care. In light of these challenges, we present a set of design implications for creating future technologies for music therapists. This work diverges from previous studies on music therapy technologies, which focus largely on interventions with music therapy clients, by highlighting the often-neglected perspectives from music therapists.

There are over three million people living with epilepsy in the U.S. People with epilepsy experience multiple daily challenges such as seizures, social isolation, social stigma, experience of physical and emotional symptoms, medication side effects, cognitive and memory deficits, care coordination difficulties, and risks of sudden unexpected death. In this work, we report findings collected from 3 focus groups of 11 people with epilepsy and caregivers and 10 follow-up questionnaires. We found that these participants feel that most people do not know how to deal with seizures. To improve others' abilities to respond safely and appropriately to someone having seizures, people with epilepsy and caregivers would like to share and educate the public about their epilepsy conditions, reduce common misconceptions about seizures and prevent associated stigma, and get first aid help from the public when needed. Considering social stigma, we propose design implications of future technologies for effective delivery of appropriate first aid care information to bystanders around individuals with epilepsy when they experience a seizure.

People living with HIV experience a high level of stigma in our society. Public HIV-related stigma often leads to anxiety and depression and hinders access to social support and proper medical care. Technologies for HIV, however, have been mainly designed for treatment management and medication adherence rather than for helping people cope with public HIV-related stigma specifically. Drawing on empirical data obtained from semi-structured interviews and design activities with eight social workers and 29 people living with HIV, we unpack the ways in which needs for privacy and trust, intimacy, and social support create tensions around key coping strategies. Reflecting on these tensions, we present design implications and opportunities to empower people living with HIV to cope with public HIV-related stigma at the individual level.