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Keolu Fox

dblp:272/9898 · DBLP profile ↗
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1ranked-venue papers
1as first author
0since 2021 · last 2020
—ORCID · unresolved

Domains — the database's venue-derived domains; a paper can count in several

Artificial intelligence and machine learning · 1 · 1 first-authorDatabases, data management, data science and information retrieval · 1 · 1 first-author

Expertise — from the expertise taxonomy: the topics of the expert's papers under the CCF categories. A weight counts papers with recency: 1 for a paper about the topic, 0.3 when the topic is its context, halved every five years.

Interdisciplinary, comprehensive, and emerging computing
1 paper
Bioinformatics and computational biology · 77% Computational social science and digital humanities · 23%

Topics — the 1 heaviest of 2, each with the papers that count most for it

TopicWeightPapersLastEvidence papers
Bioinformatics and computational biology › genomics
genomic data
0.412020
The Illusion of Inclusion: Large Scale Genomic Data Sovereignty and Indigenous Populations · KDD 2020
YearPublicationVenuePosition
2020 The Illusion of Inclusion: Large Scale Genomic Data Sovereignty and Indigenous Populations
abstract
Raw genomic data has emerged as a top global commodity in the the past several years. This shift is so new that data science experts are still evaluating what such information is worth in a global market. In 2018, the direct-to-consumer genetic-testing company 23andMe sold access to its database containing digital sequence information from approximately 5 million people to GlaxoSmithKline for 300 million dollars. Clearly there is a growing market for these products and like a goldrush, organizations are seeking to find rare samples to package up for analysis and reward. Indigenous peoples are legitimately concerned about the potential for commodification of drugs derived from research on their genomes, and as a consequence, they are sometimes reluctant to participate in genomics research. All of Us, a program of federally funded investigators are interested in recruiting participants from native groups, but given the fraught history of genetic studies involving Indigenous peoples - including examples such as the Havasupai v. Arizona State University, in which the tribe successfully sued the university for improperly using its members' blood samples - tribal communities continue to be wary about participating in the federal government's newest endeavor. Here I contextualize data sovereignty issues and identify strategies to create equity in federal government genomic data collection efforts.
Keolu Fox
KDD1