To increase patient engagement and facilitate patient-provider collaboration, tools that incorporate patients' goals into medical care plans are needed. However, few studies have explored how hospitalized patients set and share goals to communicate with their caregivers and clinical care teams. Even less is known for how pediatric patients experience sharing their goals during hospitalization. This paper presents a technology probe study to characterize how pediatric patients perceive goal-setting, and how goal-sharing affects their collaboration with their caregivers and clinical care teams. We conducted this study with 13 patient families and 4 clinicians. We found that goals set and shared by pediatric patients foster the patients' autonomy to participate in care decision-making, reveal the gaps of understanding between patients and caregivers, support the patients emotionally during patient and care team interaction, and convey the patients' personalities and preferences to the clinical care team. In addition, we recommend design opportunities to support the different ways that patients' goals can foster high-quality patient care. We also discuss how patients' goals impact the tension of shared decisional authority between patients and caregivers, and how goals support pediatric patients transition to self-care.

Leveraging existing popular games such as Pokémon GO to promote health can engage people in healthy activities without sacrificing gaming appeal. However, little is known about what potential tensions arise from incorporating new health-related features to already existing and popular games and how to resolve those tensions from players' perspectives. In this paper, we identify design tensions surrounding the appeals of Pokémon GO, perspectives on different health needs, and mobile health technologies. By conducting surveys and design workshops with 20 avid Pokémon GO players, we demonstrate four design tensions: (1) diverse goals and rewards vs. data accuracy, (2) strong bonds between players and characters vs. gaming obsession, (3) collaborative play vs. social anxiety, and (4) connection of in-real-life experiences with the game vs. different individual contexts. We provide design implications to resolve these tensions in Pokémon GO and discuss how to extend our findings to the broader context of health promotion in location-based games.

OBJECTIVE: Although patient-peer support technologies have demonstrated effectiveness in a variety of health contexts-including diabetes, weight loss, and cancer-less is known about how hospitalized patients can benefit from this support. We investigated the nature of peer support in the hospital and the impact this support had on patients' hospital stays. MATERIALS AND METHODS: We created a technology, resembling an online health community, in which patients could exchange advice about their hospitalization. We deployed it at 1 pediatric hospital and 1 adult hospital. With 30 participants, we conducted bedside interviews, observed how they used the technology during their hospitalization, and completed follow-up phone interviews. RESULTS: Participants shared advice about several topics, including adjusting to the hospital and building relationships with providers. Contrary to concerns that such a system would primarily serve as a place for patients to "complain," sentiment analysis showed that 23 of 36 (64%) of the shared advice reflected positive sentiment. Patients also reported positive impacts to their quality, safety, and hospital experience due to the inpatient peer support community. DISCUSSION: Participants benefited from peer support that transcended diagnoses and individual health conditions. The shared experience of being in the hospital was sufficient to yield valuable and practical peer support. Participants who did not contribute their own advice still experienced benefits from reading their peers' advice. CONCLUSIONS: Our study demonstrated the positive nature of peer advice exchanged, and the benefits of this advice on patients' hospital stays. Inpatient peer support technologies could be an additional resource for patients to engage in their care.

Although peer support technologies are critical resources for patients managing health conditions, they do not address the needs of patients in the hospital (i.e., inpatients) or the unique design constraints of this healthcare setting. To examine how the design of these technologies can meet the needs of inpatients, we conducted a technology probe study with 30 pediatric and adult inpatients. We created the Patient Advice System (PAS) to enable peer support in the hospital setting, then studied how participants used and perceived it during their stay. Inpatients used the PAS to exchange emotional support and share peer advice on a range of topics (e.g., adjusting to the hospital, communicating with providers). They identified several benefits (e.g., fostered connections) and challenges (e.g., competing clinical priorities) with using the PAS in the real-world context of their hospital stay. Based on our findings, we discuss three design opportunities-highlighting local expertise, designing for dynamic engagement, and providing alternative modes of peer support-for future peer support technologies to empower inpatients and overcome the difficulties they face within the hospital.

OBJECTIVE: Despite the potential values self-tracking data could offer, we have little understanding of how much access people have to "their" data. Our goal of this article is to unveil the current state of the data accessibility-the degree to which people can access their data-of personal health apps in the market. MATERIALS AND METHODS: We reviewed 240 personal health apps from the App Store and selected 45 apps that support semi-automated tracking. We characterized the data accessibility of these apps using two dimensions-data access methods and data types. RESULTS: More than 90% of our sample apps (n = 41) provide some types of data access support, which include synchronizing data with a health platform (ie, Apple Health), file download, and application program interfaces. However, the two approachable data access methods for laypeople-health platform and file download-typically put a significant limit on data format, granularity, and amount, which constrains people from easily repurposing the data. DISCUSSION: Personal data should be accessible to the people who collect them, but existing methods lack sufficient support for people in accessing the fine-grained data. Lack of standards in personal health data schema as well as frequent changes in market conditions are additional hurdles to data accessibility. CONCLUSIONS: Many stakeholders including patients, healthcare providers, researchers, third-party developers, and the general public rely on data accessibility to utilize personal data for various goals. As such, improving data accessibility should be considered as an important factor in designing personal health apps and health platforms.

Due to the prevalence of personal health tracking, cases of self-logged data being utilized in the clinic are gradually increasing. However, obstacles to clinicians' ability to further adopt such data-driven medical consultations in the existing workflow remain, such as lack of time and poor interoperability. In this paper, we conducted a workshop to design a clinician interface supporting the integration of data-driven consultation into the existing workflow and investigate the role of the interface in situ. After implementing the clinician interface designed based on the workshop results, we observed 32 cases of actual use within the clinical context. We found that our interface, DataMD, helped the clinician construct a new workflow, enhanced the clinician's counseling skills, and facilitated more in-depth conversation. This paper contributes to empirically identifying the role of a clinician interface through a user-centered design approach.

Various forms of artificial intelligence (AI), such as Apple's Siri and Google Now, have permeated our everyday lives. However, the advent of such "human-like" technology has stirred both awe and a great deal of fear. Many consider it a woe to have an unimaginable future where human intelligence is exceeded by AI. This paper investigates how people perceive and understand AI with a case study of the Google DeepMind Challenge Match, a Go match between Lee Sedol and AlphaGo, in March 2016. This study explores the underlying and changing perspectives toward AI as users experienced this historic event. Interviews with 22 participants show that users tacitly refer to AlphaGo as an "other" as if it were comparable to a human, while dreading that it would come back to them as a potential existential threat. Our work illustrates a confrontational relationship between users and AI, and suggests the need to prepare for a new kind of user experience in this nascent socio- technological change. It calls for a collaborative research effort from the HCI community to study and accommodate users for a future where they interact with algorithms, not just interfaces.

By enabling people to track their lifestyles, including activity level, sleeping, and diet, technology helps clinicians to treat patients suffering from "lifestyle diseases." However, despite its importance compared to other lifestyle factors, it is not easy to record food intake consistently. Although researchers have attempted to solve this problem, most have not considered its applicability in the clinical context. In this paper, we aim to (1) understand food-journaling practices and (2) explore the applicability of lifestyle data in the clinical context. By observing 20 patients who recorded data including food logs, steps, and sleeping time, we found that patients recorded their food logs diligently, as they were conscious of clinicians. Clinicians were surprised by the high adherence rate of journaling and tried to overlap food data with other data, such as steps, sleeping time, etc. This paper contributes by providing qualitative insights for designing applicable strategies utilizing lifestyle data in the clinical context.